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Carcinoid cancer: Want to meet others

Neuroendocrine Tumors (NETs) | Last Active: Aug 7, 2023 | Replies (93)
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@joannem

I talking about the sudden sugar drops that make you so weak that you almost can't stand up' they are similar to the sugar drops that diabetics have. my diabetic friend told me how to deal with them. you need carbs and protein so a peanut butter sandwich helps. My carcinoid group leader told me to keep glucose tablets with me away from home because that also helps It had been a long while since I had one, so it shook me up. I get nervous when it gets close to scan time and that episode did not help my nerves. I am in pretty good shape right now and I don't want to start having serious problems again.

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Replies to "I talking about the sudden sugar drops that make you so weak that you almost can't..."
Teresa, Volunteer Mentor | @hopeful33250 | Jan 15, 2017

Hi @joannem, Thanks for giving us some further information. I was not aware of that symptom before. It sounds like a frightening experience. It is good to know that you have a plan in place to treat this kind of experience.

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joannem | @joannem | Jan 15, 2017

I don't understand the mechanics of it I know it is usually caused by a food that the tumors react to. one of my triggers is avocados but most of the time I cannot put my finger on it. I was instructed to take my sugar when it happened and sure enough, it was low. Probably some release of hormones of some kind. It is nice that my group leader has a lot of knowledge and is a very smart man who can explain things. It is so hard t explain things to people who want to know about carcinoid I just recently told my niece to look it up online cause so much of the time I am at a loss to how explain it.

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Teresa, Volunteer Mentor | @hopeful33250 | Jan 16, 2017

Yes, @joannem, Carcinoid cancer is difficult to explain. I always say that it is a rare form of slow growing cancer and leave it at that. I'm interested in your support group. What area do you live in? We have one group in Michigan, however, it is a 3 hour drive from where I live. There is so much that we can learn from each other.

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