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Carcinoid cancer: Want to meet others

Neuroendocrine Tumors (NETs) | Last Active: Aug 7, 2023 | Replies (93)

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@gaylejean

Are you talking about flushing episodes? When were you diagnosed with NET? Since my diagnosis in 2002, I have had several incidents.

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Replies to "Are you talking about flushing episodes? When were you diagnosed with NET? Since my diagnosis in..."

Hi @gaylejean. How long do the flushing episodes last? Are they all day or just a few minutes? Is there anything in particular you can do to get through them?

Mine usually last several seconds to less than a minute. I can have 1-3 in a month, or even week, and then none for months. I don't know of anything you can do but I don't have to look in the mirror to know it is happening - you can just feel it.