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Carcinoid cancer: Want to meet others
Neuroendocrine Tumors (NETs) | Last Active: Aug 7, 2023 | Replies (93)Comment receiving replies
@joannem Hi JoAnne: You mentioned in your December post that you would be having some follow up tests in January. Have you had any of those tests yet? If so, please feel free to share with us how you are doing. We look forward to hearing from you. Best wishes for 2017. Teresa
Replies to "@joannem Hi JoAnne: You mentioned in your December post that you would be having some follow..."
Hello @joannem, Thanks for checking in with us. I am sorry to hear of your carcinoid syndrome experience. I'm sure that (and your doctor's response) was disheartening. Please keep us posted on how you are doing and when you begin your testing we would like to be supportive of you. Blessings! Teresa
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No I have not been scheduled yet, should be notified soon. Usually it is a phone call from the lab saying to schedule. then I have t figure a 3 day schedule that I can dedicate to the tests I am nervous because I had a carcinoid syndrome happen to me a few days ago and doc said I should not have those syndromes happening to me now. It was a few days before my monthly shot, so maybe that caused it.