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Invasive lobular cancer and treatment choices

Breast Cancer | Last Active: Nov 21 6:58am | Replies (56)

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@semurrey

I'm only one year into Letrozole for ILC and my bone density pushed into osteoporosis. I'm 58 yrs, rather thin, small build who does all the calcium, vit D and strength exercises. The endocrinologist really thinks best option is to start with weekly Fosamax. I am in remission with my Chrohn's but there is a possibility I will have to go with the annual infusion of Reclast if I don't properly absorb Fosamax. I am very anxious as side effects seem terrible and no way of knowing if I will in fact have any spine fractures which my doc is most worried about. The doc also said root canal, crowns would NOT be an issue but extractions, implants would be procedures he would recommend getting before going on the bisphosphates. Anybody have advice....xooxox

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Replies to "I'm only one year into Letrozole for ILC and my bone density pushed into osteoporosis. I'm..."

My rheumatologist put me on reclast to avoid digestion problems

I had ILC. 12mm. Lumpectomy. Last Sept. Had hysterectomy a year before that because I had endometrial cancer. I am also thin but otherwise healthy except two years ago diagnosed with RA. I control it with methetrexate and plquenil. Because of the testing I have had there is a 92% chance I will not get my BC back so I did not have radiation and opted not to do the hormone blocker. Because I have osteopinia and the blocker would throw me into osteoporosis. I lift light weights and walk and use elyptical 5 days a week. My mammos every year with ultrasound did not show my breast cancer. I found the lump myself. It showed up with mri with dye. I am having only mris now and ultra sounds but am having a hydration iv to clear the gadioleum dye from my system. My hair thinned but taking neutrofol everyday. We will see. I just. Keep moving and checking my self. Good luck to you.

I've taken Anastrozole for almost two years. All that I've experienced have been occasional hot flashes and some hair thinning. I'm glad that I've taken it. I was also taking Ibrance which caused no problems other than hot flashes and a little more hair thinning.

But you can’t have an extraction right after you take reclast

Fosamax made me so sick. Projectile vomiting for hours, i was so mad at myself for taking it. I'm a tiny 66 year old with very bad bones. I carry a disk my doctor made of my horrible neck. I have osteoarthritis, breast cancer ILC, Gone flat and just had a hysterectomy, I also have EPI, I'm sick of pain, I'm using yam cream, soursop tea and DIM. I've removed all plastic out of my kitchen and only wear cotton. Antique if at all possible. I hope this helps,
I'm at peace with my decision.
No more doctors. Best of luck