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CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Autoimmune Diseases | Last Active: May 2 12:23pm | Replies (261)
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@becsbuddy

@nemo1 I’m glad you were able to get appointments with those doctors. I included a link to the Autoimmune Association’s ‘tips on diagnosis.’
https://autoimmune.org/resource-center/diagnosis-tips/
You should get some good ideas from the site. You may also want to start a list of what hurts and what makes it better or worse, is the pain constant or occasional. List your weird symptoms. Do foods make anything worse. What makes things better. How long you’ve had these symptoms/pain. Everything you can think of. Write it down, grouping it be subject. As you do all this, questions will come to you.
I hope this helps some
Can you start working on this tomorrow so you’ll be ready for your appointments?

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Replies to "@nemo1 I’m glad you were able to get appointments with those doctors. I included a link..."
Goaway | @nemo1 | Feb 22 5:59am

Thank you Becky for the helpful information and for the link. I will go there and see what I can find and use. I really need the help with appointments in this way.

One of my biggest problems are going to appointments unprepared.

I woke up twice last night out of sound sleep with excruciating foot pain and a cramp in the calf that felt like a Charlie horse. I stretched then took half of the muscle relaxer and am taking the lyrica soon. I have to conserve the lyrica and relaxer until my visit.

Something has to happen at these appointments.

Thank you again.

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