← Return to Carcinoid cancer: Want to meet others

Discussion

Carcinoid cancer: Want to meet others

Neuroendocrine Tumors (NETs) | Last Active: Aug 7, 2023 | Replies (93)

Comment receiving replies
@hopeful33250

@tresjur and @gaylejean. Thanks for sharing your stories about the sandostatin injection problems. As I have never had to have these injections, I'd be interested in knowing what makes them so difficult. Has anyone explained that to you? If so, I'd like the information. Teresa

Jump to this post


Replies to "@tresjur and @gaylejean. Thanks for sharing your stories about the sandostatin injection problems. As I have..."

@hopeful33250, a simplified explanation is the Sandostatin treatment comes in a kit that requires mixing the drug with a reconstituted solution, then inserted in a special syringe which contains another solution. This mixed product sometimes settles and create a sedimentation that can clog the needle. Novartis, the pharmaceutical for Sandostatin, does provide training for mixing and administering the product and upon request from the patient, will send someone out to the doctor's office. Once it took six attempts
to administer one injection and the nurse was so distraught that I felt bad for her. Thank God I'm not needle-phobic and the injection really doesn't hurt that much. When I was getting a 50mg shot in one injection, though, I would have pain at the injection site the following 3-4 days after. That is no longer an issue now that take the 50mg in 2 injections instead of one.

Thanks, @tresjur, the sedimentation explains why it is so difficult to administer. You are certainly brave to keep at it for six attempts. You are certainly made of sturdy stuff!

@hopeful33250, Sturdy, yes, but mostly fortunate that I get away with an injection every 28 days instead of hours of chemo infusion. I sit among others receiving chemo in the treatment room at the cancer center waiting for my shot to be prepared. I'm wishing and praying that all cancer treatments could someday be minimized to a monthly shot or equivalent.