Chronic Pain | Last Active: Feb 27 8:03pm | Replies (22)
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@rwinney
Hi @jenguin37, welcome to Connect. I'm sorry you're going through such difficulties with your abdomen. I can understand how you must be at the the end of rope by now. Scooping out your insides though, yikes! Have you been to any large teaching hospitals for second opinions?
Feeling chronic pain is tough enough, but adding the fact that testing is showing no evidence of why that pain exists is frustrating - been there, done that. I don't have experience with abdomen surgeries other than having an appendectomy, however, I learned that the residuals of surgeries can sometimes lead to central sensitization whereas even once an acute issue has been resolved, there remains pain from central sensitization.
Here's more about Central Sensitization Syndrome (CSS):
CSS is all I can think of regarding your unfortunate abdomen history and circumstances. My health journey and experiences with chronic pain that could not be explained or proven through diagnostic testing, is what lead me to learning about CSS and working with Mayo's Dr. Sletten. It might be worth checking out for you. Thinking outside the box, maybe??? I look forward to hearing back with your thoughts. Is it possible CSS resonates with your situation?
Thank you so much for taking the time to respond. I really appreciate you taking the time to share this information with me because in all my research I had not come across this as a possible reason for what I am experiencing. A lot of what I read definitely resonates with what I'm experiencing. I am going to go over this and the other syndrome mentions on this thread called Abdominal Cutaneous Nerve Entrapment with my current surgeon, but if he is not receptive to either then I will definitely be reaching out to a bigger hospital like Mayo or Cleaveland Clinic. I think it's possible I may be dealing with both of these simultaneously. I know something is going on and I am suffering and its definitely time to look outside the box.
Thank you so much for taking the time to respond. I really appreciate you taking the time to share this information with me because in all my research I had not come across this as a possible reason for what I am experiencing. A lot of what I read definitely resonates with what I'm experiencing. I am going to go over this and the other syndrome mentions on this thread called Abdominal Cutaneous Nerve Entrapment with my current surgeon, but if he is not receptive to either then I will definitely be reaching out to a bigger hospital like Mayo or Cleaveland Clinic. I think it's possible I may be dealing with both of these simultaneously. I know something is going on and I am suffering and its definitely time to look outside the box.