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Carcinoid cancer: Want to meet others

Neuroendocrine Tumors (NETs) | Last Active: Aug 7, 2023 | Replies (93)

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@tresjur

@gaylejean I have had 4 octreoscans over the last 7.5 years, however it's been about 2 years since the last one. I currently take 50 mgs of sandostatin every 28 days. Originally I was given one shot of the 50 mg, but
for the last 2 years the shot is broken down into 2 shots (25 mgs in each hip). With the one shot, the injection
shot was sore for 3-4 days after. I rarely have soreness with the 2 shot procedure. The downside is if the
needle jams, then it takes more attempts to give the 2 shots. My last shot was 9 days ago. It took 2 attempts
to administer the shot in my right hip and 3 attempts in the left. Ouch!

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Replies to "@gaylejean I have had 4 octreoscans over the last 7.5 years, however it's been about 2..."

Ouch is right! Over the years, I have had about four different nurses give me the shot. Only one nurse has ever had a problem with the needle jamming (happened two times) and having to retry. I get excited when I see any nurse other than her is working that day. Gayle

If she waits more than two minutes after mixing it it will jam because it gets thicker. The shot comes with instruction ask het to hand it to you and train her.