You are absolutely NOT ALONE! Your story (with countless others) is similar to mine. Years of going to doctors, emergency rooms, test after test after test, but everything is normal?! I didn’t know what was wrong with me, heart palpitations, gastrointestinal issues, nerve pain, intense sinus/ear pressure, balance problems, brain fog, episodes where I feel I’m going to lose consciousness and this internal vibrating sensation in my body. I too felt loss, unheard, hopeless, in despair and yea suicidal. A few doctors said it was just anxiety, nothing wrong with me. It wasn’t until a family member mentioned Long Covid and I should research and look into finding LC Recovery doctors. I found two clinics here in NYC. I two was diagnosed with POTS, and if nothing else I felt validated that it was some phantom illness in my head. Do I physically feel better not at all, do I wish whatever this is just take me out of my misery absolutely!
I’m grieving a life I no longer have, still trying to cope and accept. Feels like the world is moving on without us.
I do have a pretty good support system it does help, there are lots of support groups out there most are through major hospitals. I have one that we do through zoom, please let me know if you interested.
I’m sending virtual hugs, lots of light and positive thoughts. PLEASE DONT GIVE UP!! We are with you!