Yes, a support group would be good even if you connected with them by email or phone. There is one person in the Michigan group who also has the disorder in her family. I have never taken any other treatments other than surgery since mine have been small and there is no evidence of metastasis so far. It is good to know about Sandostatin, though. The leader of the Michigan group mentioned he has used it as well. I'm not sure what state you live in, however, if you would like to correspond with the person in Michigan who has the family history, I'll see if I can put you in contact with her via email. Just let me know. Have you checked the website for support groups to see if there is one in your state?