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MAC & Bronchiectasis | Last Active: Mar 8 1:16pm | Replies (55)

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@dreher

I’m sorry the diagnosis is causing you such dread and anxiety. I think all of us had that same anxiety and fear of the future when we were told. It’s been a little over 10 years since I found out I had MAC. I was lucky that my doctor had been treating another lady with MAC for years and was reassuring that this was going to be manageable. I was quickly referred to specialists (pulmonologist and infectious disease). I had meds, many of them, as I had some trouble with a couple of them, so they changed those. I also had MRI’s and scopes. I later went to MUSC for more intensive evaluations and treatments. I was taken off all meds and placed on a Nebulizer with saline. Bottom line is that except for a couple medications, I really haven’t had much difficulty. Not with any aspect of this diagnosis. I cough some every day. But, not such that it interferes with my life. Covid was scary, but my husband and I got all of the shots and took precautions. We only just this month got Covid and it wasn’t more than a cold for me. I have some other medical problems and I am older than you, probably by a lot. But, MAC has not stopped me from doing what I want to do. I don’t feel especially bad from it, ever. Good luck to you. Follow your doctor’s advice and read this site. You’ll learn a lot from the people here. I am sure you will be ok, and much better than you fear. ❤️

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Replies to "I’m sorry the diagnosis is causing you such dread and anxiety. I think all of us..."

Were you able to, or did you, take Paxlovid?
I had Covid for the first time this Feb.
I took Paxlovid because of the BE and my age (81+) although all tests indicate my overall health is good. No MAC so far. I just thought I had to take it with the BE and my age.
I didn't want to take it but not knowing all outcomes with having BE and 'elderly' I took it.
Thoughts of those who had Covid and the decision to or not to take Paxlovid?