A support group would be helpful, I think. Just to compare treatments others are receiving. I have been living with this since 2002. My mom had the same diagnosis and she lived with it for 24 years before dying at 85. She never had treatments of any kind which is a hopeful prognosis for someone older with this diagnosis. I get a Sandostatin shot 1x/month with a recent increase from 20 to 30 mg.