Dear Gaylejean:  If you would like to find a carcinoid support group in your area here is a website where they list all of the groups in the U.S. Support Groups Directory - Carcinoid Cancer Foundation.  The group in Michigan, where I live, is about three hours from me, however, I've been in contact with them through email and phone calls and have received a lot of good information that has helped me to talk to doctors more intelligently and certainly understand this rare disorder in a new way.  Best wishes you to and blessings!  Please keep in touch via Mayo Connect.
Support Groups Directory - Carcinoid Cancer Foundation

I had surgery at Mayo Clinic in Rochester, MN in 2016. 3 feet small bowel, 12 tumors, 13 lymph nodes removed. Don’t Have syndrome but lots of pain from adhesions. Have had scans past three years showing no return. Every 6 mos blood work.
Diagnosed during exploratory. Original diagnosis was Messenteric Paniculitis. Now am followed by oncologist at Dana Farber Cancer Institute.