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Mac + lung cavity

MAC & Bronchiectasis | Last Active: Mar 3 9:50pm | Replies (128)

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@thorne

When I was first diagnosed, I had a cavity and active MAC. I did the big three and tolerated them well and nebulized twice a day with saline. My cavity stayed the same but I now constantly test negative for MAC and my sputum decreased so much that I have started nebulizing only once a day. I have two dogs. Everything feels so overwhelming at first but you can gain control of your life again and you can live with a cavity, even though it isn't ideal. A good doctor familiar with this disease is important but this forum and the one that NTM runs have taught me as much as my doctor about how to manage this disease and maintain my health. So thank you to all of you and good luck! And don't give up your precious pets -- your mental health matters too.

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Replies to "When I was first diagnosed, I had a cavity and active MAC. I did the big..."

I don't know why my doctors are telling me not to take the big 3 if they will cause cavity. 🙁
The doctors are telling me my MAC is not that much!
But I have been getting lung infections once a month and my doctors put me on the antibiotics for a short time. I am so uncomfortable and embarrassed in front of friends and family because of non stop phloem.

One of my lung doctors also told me can't live with my cats. They are making my situation worse. I can't give them up. 😭😭😭