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Has anyone tried the medication leflunomide?
Polymyalgia Rheumatica (PMR) | Last Active: May 16 3:48pm | Replies (46)Comment receiving replies
I am currently on LF. My rheumatologist started me on this 3 months ago as I taper off prednisone. I am down to 2.5 mg as of last Saturday. I have never been able to get this low in my prednisone dosage before.
I have some aches and pains but nothing excruciating like I have experienced with PMR before. I am truly hopeful that this will allow me to transition off prednisone. I have not experienced any weight loss. That would be a major plus since I have gained 40# over the last twenty months.
I see my doctor next month and by then should be completely off prednisone so I will find out if he wants me to continue with the LF.
Replies to "I am currently on LF. My rheumatologist started me on this 3 months ago as I..."
Hi, I am wondering what taper schedule you used with your prednisone once the LF started working for you.
I am now 3 months on LF and feel the best I have in 2 years. Now at 5 mg pred, I'm being careful to not create any increased inflammation and set my self back. But I do feel very good and so hopeful. Thanks so much for your information. J
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Your story is so interesting and sounds very similar to mine, generally speaking. Yes I am feeling so hopeful for tapering again, as that seems to be the concern of all Doctors regarding prednisone, although it works so well for me.
At this 4.5 week point of LF I am feeling the best I have in nearly 2 years. I have always been a very healthy active person and have experienced many physical and emotional ups and downs with changing (roller coaster) prednisone doses.
Your post of LF at 3 months gives me great hope in the direction I'm heading. Even at this point I am doing things that I have been unable to do, or do without suffering the consequences, since before this whole thing started. Thanks so much, I wish well to everyone through this journey. Again understanding that we are all different in our responses to treatment, may the right one be found.