Osteoporosis medications and neuropathy

Posted by detc @detc, Feb 19 7:34am

Has anyone developed neuropathy after taking Actonel or other osteoporosis medications? I was diagnosed with Covid vaccine induced neuropathy and I’m wondering if my robust, over active immune system may respond in the same way to osteoporosis medications.

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I have peripheral which at the moment is pretty quiet except for electric shocks at night. I was just diagnosed with osteoporosis. I’m scared of the meds, but scared to fracture. I hadn’t, however, really thought about whether the bone meds would cause my pn to flare up. I did ok with 4 Covid shots through fall 2022 but had a flare up of my neuropathy one year ago so I don’t know if I want to risk any more shots. I can’t say I’m glad others are in the same boat because it stinks. But maybe I can say its helpful to know others are dealing with similar issues.

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I have terrible PN and it is working it's way up my feet and arms. I have tried Gabapentin. Pregabalin, and Duloxetine, and the last one ended up with me in the ICU at the VA med Center here in Grand Junction, CO.
I had terrible reaction to all three. I now think this all may be part of a "leaky gut syndrome. and hope to find a great probiotic. So hard these days when everyone has an opine and send in your $39.95 for the cure if you buy 6 bottles for a lower price and the old standard guarantee of 60 days or 6 hours whichever some first and some do not return your money. Sure no fun when you are a 80 year old partially paralyzes Vietnam Veteran with a bad case of PN!!! Fred at 1031frs@gmail.com

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@matilda1993

I have peripheral which at the moment is pretty quiet except for electric shocks at night. I was just diagnosed with osteoporosis. I’m scared of the meds, but scared to fracture. I hadn’t, however, really thought about whether the bone meds would cause my pn to flare up. I did ok with 4 Covid shots through fall 2022 but had a flare up of my neuropathy one year ago so I don’t know if I want to risk any more shots. I can’t say I’m glad others are in the same boat because it stinks. But maybe I can say its helpful to know others are dealing with similar issues.

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It’s very difficult to make a decision when there are no definitive answers. I cannot, with any certainty, safely take any more Covid vaccines. Ultimately, I think we just have to try to weigh the pros and cons of the osteoporosis meds vs the risk of fracture with the information available to us. Good luck to you.

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@fred101

I have terrible PN and it is working it's way up my feet and arms. I have tried Gabapentin. Pregabalin, and Duloxetine, and the last one ended up with me in the ICU at the VA med Center here in Grand Junction, CO.
I had terrible reaction to all three. I now think this all may be part of a "leaky gut syndrome. and hope to find a great probiotic. So hard these days when everyone has an opine and send in your $39.95 for the cure if you buy 6 bottles for a lower price and the old standard guarantee of 60 days or 6 hours whichever some first and some do not return your money. Sure no fun when you are a 80 year old partially paralyzes Vietnam Veteran with a bad case of PN!!! Fred at 1031frs@gmail.com

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I’m very sorry for what you’ve experienced. I wish you the best.

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@detc

Thank you very much for your input. I’m trying to put off taking the osteoporosis meds for as long as possible, hoping to find non-prescription alternatives.

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Look into facebook page "Natural Solutions to Osteoporosis" Very helpful regarding food to eat and exercise to help. Good luck!!

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@bb0753

Look into facebook page "Natural Solutions to Osteoporosis" Very helpful regarding food to eat and exercise to help. Good luck!!

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Thank you, and thank you for the reference. I’ll look into it.

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@bb0753

Look into facebook page "Natural Solutions to Osteoporosis" Very helpful regarding food to eat and exercise to help. Good luck!!

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I tried to find the Facebook reference you suggested. I could not locate it. Is there anything more specific to the title that I should be looking for? Thank you.

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@pah17

Interested because I am starting Gapapentin for neuropathy as well as Boniva for osteoporosis at the same time.

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Me too been on both for a few years Gabapentin for nerve pain doesn't help much with the neuropathy mine it did improve after I started taking the metabolic prepared L-Folate to process B vitamins my levels of B6 and B12 were off the charts high because I have a gene that lacks the enzyme to process B6 and B12 so I had B vitamin toxicity which ironically has the same symptoms as low B12. Good luck with your journey.

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@detc

I tried to find the Facebook reference you suggested. I could not locate it. Is there anything more specific to the title that I should be looking for? Thank you.

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Osteoporosis Natural Remedies. Sorry for confusion

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@bb0753

Osteoporosis Natural Remedies. Sorry for confusion

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Thank you for the clarification.

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