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Merkel Cell Carcinoma: I'd like to hear from others

Neuroendocrine Tumors (NETs) | Last Active: Oct 20 7:30pm | Replies (133)
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@lynn99

Roger, thanks for your reply. I tried your oatmeal yesterday and it was good. Glad you are not having any side effects, hopefully you won’t. I am experimenting with new recipes with my new blender and able to get liquids down so much easier. Adding protein powder and greens to up my nutrition. I do have the magic mouthwash and it is helping. My Dr recommended flat ginger ale for the bad taste in my mouth. Will try that today. Gum helps a bit. I only have a little taste on one side of my mouth. Did you have to go to a narcotic during the day? I started one at night to sleep better. I am still getting my walks in. The woods are actually muddy. So unusual in Wi in Feb! Hang in there.

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Replies to "Roger, thanks for your reply. I tried your oatmeal yesterday and it was good. Glad you..."
rogermcintire | @rogermcintire | Feb 22 5:23pm

Hey Lynn, good to hear from you. O, I forgot to mention I put in a heaping teaspoon of sugar in the oatmeal and a little salt. (This is why my wife won't let me in the kitchen!)
The blender sounds like a good idea and hopefully it will be useful in preparing foods for you.
I was fortunate to not need any stronger pain meds than Motrin during the day and Lorzapam (1 mg) at night for sleeping. The radiologist recommended I use what was necessary for pain and in addition I was prescribed Gabapentin (300 mg). I am weaning myself from the Gabapentin because I no longer have any problem with pain.
My taste is slowly returning but has a long way to go. My sinuses are finally improving because I had some bleeding for over a month after treatments ended. Toothpaste no longer burns my mouth and gums while brushing my teeth. Thank Goodness most things are returning back to normal!
We were able to play golf yesterday and I'm back to working out so keep on with your walks in the woods and regarding your treatments, "This too shall pass!"

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