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MAC & Bronchiectasis | Last Active: Mar 8 1:16pm | Replies (55)

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@karen71

Well, I’ve been on my triple cocktail since August. Along with an inhaler. I was diagnosed with MAC in Oct ‘22 but didn’t need to start the RX’s until August ‘23. I’ve not had any side effects… I’m not coughing anymore. I also breathe into a contraption ( opposite of a spirometer) just to add a little help keeping lungs clear. I do get tired but according to my liver function test, I’m anemic. Have my next appt with pulmonologist in a week so will find out what to do at that time. The diagnosis freaked me out. I’ve never smoked so lungs weren’t compromised. It was just lucky I found out what was wrong with me when I did. My PCP asked for a CT Scan of my heart to determine a baseline for heart calcification. Zero calcification but discovered spots on my lungs. Had a bronchoscopy and here we are. Told its a two year process. After that, just the inhaler a few times a week to keep lungs open. Has anyone else had the same experience? I’m now 71, work out three times a week and try to walk in between.

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Replies to "Well, I’ve been on my triple cocktail since August. Along with an inhaler. I was diagnosed..."

Karen, my experience is very similar to yours. Spring of 2021 my pcp recommended a scan to get a calcium score because of my family history. Heart was fine but places discovered on my lungs. She suggested a follow up scan 6 months later and they were still there so referred me to a pulmonologist who diagnosed bronchiectasis and suspected NTM. I was experiencing no symptoms, didn’t cough up anything. Had a bronchoscopy and it confirmed NTM. Sent me to a ID doctor and both wanted me to start the antibiotics right away. I refused. Went to NJH and then found a nearby pulmonologist who specializes in bronchiectasis. I produce sputum now but NTM does not show up, yet my last CT showed my lungs were worse. Will see my doctor next month and see what is recommended after latest cultures come back. I am 66.