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Does anyone suffer from Crohn's or colitis?

Autoimmune Diseases | Last Active: 5 hours ago | Replies (109)

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@busyyaya

Good luck in April with return to work, that’s a ways away so hopefully you’re on track.
The fact you’re having some good days should give you optimism! It takes a toll so when you get medication right it takes time to bounce back.
I have tried to read all evidenced based studies on diet and anything else I can get to broaden my understanding of the shit storm, pun intended.
Every time I’m at the university hospital for appt I’m grabbing a coffee and in the medical library digging in. Do I know how to have fun…haha.

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Replies to "Good luck in April with return to work, that’s a ways away so hopefully you’re on..."

I haven’t seen any diets for UC with overwhelming evidence to decrease inflammation/remission? I think I read a meta analysis review of multiple evidenced based studies not showing any significant evidence. Seems it’s highly individual responses. I really wonder if there was compliance issues that decreased the evidence? I’m still experimenting feeling sick on most everything most likely related to the stress of my doctor telling me I’m playing with fire not having a total colectomy with a 55 year history of UC. I’m not ready to lose my entire colon. I’d agree to a partial of problem area in descending colon but not all. I’m so upset I think it’s making me worse. I don’t want a permanent ostomy as I don’t think that will stop the storm inside of me with all the extra intestinal symptoms I have. I feel like I want to get to a root cause analysis of the immune response so I’m going to a functional medicine Dr to see if there are any other options.