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Does your Artificial Urinary Sphincter AUS800 leak?

Prostate Cancer | Last Active: Feb 21 8:26pm | Replies (10)
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@colleenyoung

Good questions, @budisnothome. I'm tagging fellow members like @seamayofan @jonbuuck @scullrower @alw @sam60, who have experience with an artificial urinary sphincter and can share their tips and experiences regarding leaking, cuff sizes and pumping.

I have a question for you too. Did you get a medical bracelet indicating that you have an AUS?

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Replies to "Good questions, @budisnothome. I'm tagging fellow members like @seamayofan @jonbuuck @scullrower @alw @sam60, who have experience..."
budisnothome | @budisnothome | Feb 20 8:26pm

Not yet. But I think I will because I can't get cathetered. Probably good idea? I could not find the old posts. Thank you

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jbuuck | @jonbuuck | Feb 21 5:36am

Thanks, Colleen. I've had my AUS for almost four years. My experience is similar to scullrower. It took me several months to heal and become accustom to using the AUS. I did not need to have a second surgery to address the cuff size. Yes, the valve is sensitive, so I need to make sure I'm sitting on a flat surface. When I have caffeine or alcohol, my bladder is more sensitive and causes leaks. I always wear a light pad. I'm on a plane several times a month, and lifting my suitcase into the overhead bin can cause a leak. I have had to learn to Kegel before I lift or stand to help with the leaking. I did have my AUS during my radiation, which may have impacted the strength of it. Now for the good news: the AUS allows me to live my life normally. If you'd like to discuss in further detail, I'm happy to connect virtually or by phone, just private message me. I wish you all the best.

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