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PN: From Anger to Acceptance

Neuropathy | Last Active: Aug 3 9:51pm | Replies (83)

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@jakedduck1

@dbeshears1
Thank you Debbie for the ataxia info. Illyas about it. I had a severe episode of ataxia probably caused by Dilantin years ago and was in the hospital, yes Ed, another potential side effect. I wonder if my frequent falling is related to ataxia.
Thanks again Debbie.
Jake

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Replies to "@dbeshears1 Thank you Debbie for the ataxia info. Illyas about it. I had a severe episode..."

Jake - I'll be honest, since I've moved here, I was surprised to learn that the medical system I now use has a large (and growing) Genetics Department. I was first contacted to learn basic ancestry information. Then my cardio doctor hooked me into a cardiac genetics counselor, Then my PCP referred me to the Neuro genetics group. I guess it's like bloodwork - there has to be a reason to order it individually vs just testing every possible gene for clues, and there is a specialist for each medical specialty. I will say that the Cardio genetics result offered a good clue about my Idiopathic heart issue, but I haven't had a sibling take the test to see if they might have a marker. (though my understanding is that the way genes split, siblings aren't expected to be identical). I am in unfamiliar territory with genetics but am confident that 20 years from now, they'll probably know a lot about a baby before they're born.