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Anyone out there with Autoimmune inner ear disease (AIED)?

Autoimmune Diseases | Last Active: Jun 25 3:06pm | Replies (217)
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@poc1115

My rhematologist ordered a lab test and I think it was called Heat Shock Protein (HSP-70). It came back as a positive so we made the assumption that I had AIED. The after hours medication was predisone I think. Honestly it's been so long that I can't be 100% certain on that. This was per a neuro-otology MD I saw. He confirmed there was nothing I could do re: the tinnitus, and the AIED usually comes on suddenly that it was important to act quickly to keep it from crashing so to speak so that's why he recommended something to take after hours. I never had to use that prescription.

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needanswers7 | @needanswers7 | Feb 20 2:06pm

Thank you for the info. I’ll ask about the HSP-70. I’ve been using a good pair of Signia hearing aids for a couple of years. My tinnitus is constant and loud. It’s like having a manufacturing plant running all the machines in my head in both ears. I think I could hear so much better if I could stop the tinnitus. I’ve avoided salt, alcohol, caffeine, sugar, spicy, stress with little improvement. Have you found a specialist with AIED successful experience?

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