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Does anyone suffer from Crohn's or colitis?

Autoimmune Diseases | Last Active: Nov 17 8:48am | Replies (111)

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@busyyaya

I have had UC for 55 years, it’s been a struggle at times lessons learned along the way….
1) Stick to medicine as ordered!
2) Ask to go wean to more tolerant doses/meds once under control
3) Keep stress levels at a minimum- find ways to diffuse. (Mine is walks in nature)
4) Join a support group on FB or where ever to get some help knowing your not alone in your journey
5) use a GI Dr with interest in your condition
That’s just a few tips from an experienced IBS patient with UC specifically. Be aware of dangers of going off meds & extra intestinal manifestations of UC/Crohns.
I’m seeing multiple specialties for all the extra intestinal related problems
I wonder if I had stayed on meds as I was supposed to in past I wouldn’t have the sequela of issues.

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Replies to "I have had UC for 55 years, it’s been a struggle at times lessons learned along..."

Thank you for your response I seem to have good days & not so good days my biggest fear is I go back to work in April & I just know I want to feel normal like I did last year but everything is different now I just need to act like Crohn’s is not going to ruin my life I have to find ways to work around it! ❤️❤️