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DiscussionWant to talk with others. Have you found relief from CRPS?
Chronic Pain | Last Active: Jul 10 6:30am | Replies (235)Comment receiving replies
Replies to "Question for your Doctor How does your body have both fibromyalgia and CRPS? Watch Dr. Phillip..."
Fibro was diagnosed over 3 decades ago, although I had been feeling the classic markers for a long time prior. I raised 3 children, earned three degrees (including masters), and taught full time while coping with fibromyalgia (and let's not forget depression and the nasty impact of antidepressant drugs). Not a martyr...just dealt with what I had to do at each stage of our lives. Cyclobenzeprine has been my friend for decades. It works well enough for me, considering all the other things on my plate (including pains imposed by polymyalgia rheumatica). Rheumatologist had included amitriptyline, and I did stay on it for a couple of years or so, and combined with the cyclo I slept well and symptoms were not bad. But the amitriptyline eventually caused nasty, scary nightmares, so I got tapered off it. It's one of many meds that my body does not tolerate. Hot showers feel so good and do help with the fibromyalgia (and other pain sources).
CRPS resulted in left ankle/foot/leg from horrid fall in June 2021. Seriously intense burning nerve pain, 24/7 and ranging from Pain Scale 7 to 9 out of 10 (although at times was more of a 15 out of 10!). It was hell indeed.
I've been receiving PT with my incredible therapist on areas affected by CRPS since December, and I do the exercises at home also. Has been very effective! Still have CRPS nerve pain but for past 2 weeks has been a blissful Pain Level 5-6. Yes, blissful compared to what I'd been enduring. That pain level is so much more acceptable to me! Still have burning nerve pain but does not worsen as day goes on.
So you and I have both lived with pain for many years...tells me that you really do comprehend what I've been through (and continue to do so).
I'll check out Dr. Getson on UTube. Mil gracias for the info.🌺