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Chronic Abdominal Pain | Normal Test Results

Chronic Pain | Last Active: Feb 27 8:03pm | Replies (22)

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@jenguin37

Hello, I am new to this, but I came across this post while searching for answers to my chronic abdominal pain which is located in the upper right quadrant. I have had multiple abdominal surgeries over the past 15 years for a variety of reasons that all stemmed from a ruptured appendix with a bowel resection while 6 months pregnant. Since then, I have had multiple bowel blockages with 2 ending in bowel resections. I have also had 3 hernia surgeries one with mesh. The mesh caused all kinds of issues and finally had to be removed because of an open wound that would not heal due to underlying infection in the abdomen. I have been in chronic abdominal pain from the beginning off all this and it is getting worse. All tests are normal or inconclusive. I did have an adhesion removal in October which did not grant me any relief and I just had my gallbladder taken out a few weeks ago and I am still in miserable pain. No one can seem to find the cause for my pain. I completely relate to the comment of wanting to just go in and "scoop" out whatever is in there and that's exactly what I told my surgeon which led to removing my gallbladder. I am at a loss of what to do and who to see. GI says not them. Any information or thoughts on my situation would be greatly appreciated!

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Replies to "Hello, I am new to this, but I came across this post while searching for answers..."

Hi @jenguin37, welcome to Connect. I'm sorry you're going through such difficulties with your abdomen. I can understand how you must be at the the end of rope by now. Scooping out your insides though, yikes! Have you been to any large teaching hospitals for second opinions?

Feeling chronic pain is tough enough, but adding the fact that testing is showing no evidence of why that pain exists is frustrating - been there, done that. I don't have experience with abdomen surgeries other than having an appendectomy, however, I learned that the residuals of surgeries can sometimes lead to central sensitization whereas even once an acute issue has been resolved, there remains pain from central sensitization.

Here's more about Central Sensitization Syndrome (CSS):

Very Well Health -
https://www.verywellhealth.com/central-sensitivity-syndromes-716160
Mayo Clinic's Dr. Sletten on CSS -


CSS is all I can think of regarding your unfortunate abdomen history and circumstances. My health journey and experiences with chronic pain that could not be explained or proven through diagnostic testing, is what lead me to learning about CSS and working with Mayo's Dr. Sletten. It might be worth checking out for you. Thinking outside the box, maybe??? I look forward to hearing back with your thoughts. Is it possible CSS resonates with your situation?

Three years next month since mine started from a fall, which caused a concussion and a
detached retina. After surgery on my eye, I had to position hanging my head off the bed on the right side for three weeks. I could get up once an hour for 15 minutes and yet still had to hold my head to the side. My right side had had excruciating pain for 3 years now. When I fell I hit my ribcage on the upper waist and my cheek and ear. Multiple xrays, mri's, ct scans, bloodwork, inflammation test,
kidney, liver, colonoscopies (two the last three years), endoscopies, exploratory surgery, adhesions removed, liver cysts removed. I have seen Thoracic Surgeon, Gastro's, Neurologists,
several ER visits ( which they see me coming and they think I am crazy and treat me as such)
none of the Doctors take me seriously except for one Thoracic Surgeon and he is afraid
to treat the herniated disc at T8 and T9. These discs can cause abdominal and bowels issues.
I have researched this until I can't take it anymore. Here is my story. It was one day before
my Birthday. I had walked that morning two miles and felt great. I saw some Ivy taking over
one of my shrubs and stopped to pull it. I was on an incline and when I pulled it nothing happened. I planted my feet to get a good stance, I pulled again and it let go with a vengeance. As I stepped back to keep from falling, my tennis shoe hung on a concrete planter
positioned on my walkway, I turned and flipped over the urn, striking my waist and head on
the opposite planter. Two days later felt weird. Long story short, went to my Doctor, who
sent me for an Mri on my upper torso, nothing but bruising. They did not bother to look
at my head until I had the detached Retina and that was a month later. Since that time I have lived in Hell. I awaken every night around 2 a.m., excruciating pain in my waist under my
right rib cage. I am so nauseated I have to get up, I walk the floor holding my side, I feel
like I have a huge ball in the bowel, when my bowels move, it starts to ease somewhat; however I have had chronic constipation since the fall and nausea. over a thousand days of no sleep, chronic constipation, chronic nausea. Doctors on want to give you pills, not actually try to find out what is wrong. No one will listen, I have been everywhere and Doctors just do not seem to want to find out why I hurt. I am not depressed
good Cognitive skills, balance, but the pain is exhausting me. I do not know what to do,
no problems sleeping if I were not in pain. I sleep about 3 hours a night. I am bloated, tired, frustrated, constipated and can't lie on that side. I sleep with icepaks, heating pads and am just plain sick of it. I told
a Doctor that told me" you are just afraid of dying." No I am not afraid of dying, I am afraid
of living like this several more years. This is constant. I have no life. Tens machine helps sometimes, but other than that, nothing seems to help. I would love to go to someone that would observe what i live through every single night. I eat exlax
like Hershey Candy Bars. My guts hurt to say the least. As of right now, I have chronic constipation, liver cysts, chronic nausea, pain on the right side and when I push in on my waist, I wish I could take a knife and cut it out. I would love to go to the Mayo Clinic, when
this happened in 2021 the height of the Covid Pandemic, I took the shots which made it
worse. Tried to get an appointment in Jacksonville, but could not get in. Don't know if that had anything to do with it, but shortly after the shots is when i fell.
Shots put me to bed for a week, but thought nothing of it. I have since had Covid, Shingles and the Flu. Will not take another vaccine, don't trust them. I have enough going on without
more symptoms. Oh well, just the hand I was dealt, but awful strange many of these texts
sound like mine. Right now my go to, is Advil, Tens machine, Zofran and Prayer. Prayers for all of you, just wish someone had an answer. I have had epidurals to boot, even hip replacement and struggled with the pain. I hate pain meds, because they constipate me. No easy answers. Hang in there, you are not alone!