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Myelomalacia: Let's connect

Spine Health | Last Active: Jun 4 7:32pm | Replies (52)

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@donnadrury

Hello, Myelopathy is the medical term for all the symptoms that your myelomalacia has caused you. There is a great support group with an academic core of physicians and researchers at this site: myelopathy.org. I have found it to be an excellent resource at all levels (knowledge, sharing, support, etc) as I try to learn to cope with the many challenges I experience from myelopathy/ myelomalacia. I hope this helps.

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Replies to "Hello, Myelopathy is the medical term for all the symptoms that your myelomalacia has caused you...."

Myelomalacia, from what I could gather from materials sent from the national medical library, is after myelopathy. It's rare , more common in dogs lmao. A spontaneous spinal cord bleed caused the myelomalacia. I have myelopathy above the area of myelomalacia and that also required surgery as it was paralyzing me. But I am very happy to have another site to ask advice on my specifics and to learn more about it, thank you 🤗

Yeah, from the myelopathy.org website. Myelomalcia can be caused by myelopathy but can occur for other reasons as well. Thank you again , I couldn't find enough info to inform my pain management