I'm so glad I saw your post. This is the first reference I've seen on this site about bumps or cysts. I didn't have these at the beginning of the diagnosis of lichen last February but they have developed over time and are quite painful. Simply sitting down is unpleasant so I stand a lot. A recent dermatologist called them cysts that are under the skin in the labia . I have decided it may have been caused by all the steriods (side effects) and so stopped using . I also have hard little bumps in the groin area that are equally painful that another dermatologist said was caused by friction that seem to be getting worse. So far, I haven't found anything for pain. Have read some are using lidocaine compounds. None of my bumps have gone away , however. Can you wash with the Hibaclens inside the vulva area?
I have an appointment , unfortunately not until June, with yet another gynecologist who supposedly specializes in vulval pain problems, etc. . Have seen three gynecologists and two dermatologists so far. The constant stress that is very wearing on me. I am not convinced this is lichen sclerosus and have been reading about all the different kinds of "lichens" . I now have a large file on this topic. I'd appreciate anything you have to say about the cysts or bumps you are experiencing.