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← Return to PN: From Anger to Acceptance
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"I have no pain with my PN, only numbness and horrible balance."
It's the damnest thing. I've caught myself wishing I had pain––at least a little––to go along with my PN. It seems every time I tell a neurodoc that all I have is numbness and a silly (read: precarious) way of walking, he begins to lose interest. I've grown to accept what appears to be a doc's fading interest as his way of signaling that without pain, he's nothing to suggest, no drug, no therapy, no at-home regimen, absolutely nothing. As you say, Ed, something else to add to the mystery.
Replies to ""I have no pain with my PN, only numbness and horrible balance." It's the damnest thing...."
I try to imagine if all my pain was replaced with numbness. Very weird.
I just had a follow-up with a neurologist at UAB (large teaching and research institution ). That visit reminded me that these doctors have seen, heard and studied every detail and variation of our illnesses. I could see his mind working as I asked question after question. His focus on me was laser sharp. What a refreshing and validating thing.
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Ray, I totally agree with your comment about the pain. I've been told that with my PN, there is no medication to reduce symptoms. In the past, my primary offered to ship me off to PT but then I run across the scenario that if I don't improve in PT, the insurance will not pay. Ok Ed, you need to stand on one foot with eyes closed for 6 seconds. Really, I can't stand on 2 feet with eyes closed for 6 seconds. Yes, frustrating.