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Strange taste - change in taste

Head & Neck Cancer | Last Active: Feb 22 3:26pm | Replies (15)

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@sepdvm

@celia16 , The metallic taste I experienced was from tumor invading the Facial nerve and it was gone after surgery because a section of nerve was removed so I had complete facial paralysis on the right side. Honestly, after that big surgery with a section of skull removed as well as parts of middle ear, the dizziness and lack of hearing and facial paralysis and subsequent eye care all took priority over my taste. Then I started radiation and a targeted chemotherapy 5 weeks later and that blew my taste away. I didn't even like chocolate! That lasted for several months after the treatments ended. The return was gradual. I still have a hypersensitivity to salt 12 years later. I have a friend who had Covid early in the pandemic and lost her taste for over a year before it started to return. That syndrome can be very long lasting. I think that if your surgeries had affected your taste that it would have been immediately afterward. Have you researched scent retraining? I know that was one thing suggested for Covid damage. Perhaps there is taste retraining also?

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Replies to "@celia16 , The metallic taste I experienced was from tumor invading the Facial nerve and it..."

My goodness you really went through an ordeal. Glad you’re better. I appreciate you sharing. 🧸

How did you know you had facial cancer?

I have been doing scent retraining and think it’s helped a little. I guess they will reassess my smell at next ENT visit. I am wary of those scent cards. I don’t see how they could be very accurate, but we’ll see.

I like the idea of taste restraining. I’m open to anything. I haven’t heard of that. To me, my food doesn’t taste bitter or metallic, it’s that my mouth taste that way constantly. I know some foods have little taste to me, but others seem to taste it fine. So…idk. It’s frustrating.

I have lost 66 pounds, but on purpose for fitness reasons. I must say it’s been easier to turn food down.