What would you do? Medication.

Posted by babs10 @babs10, Feb 12 7:18pm

Hi, I am interested in lay people opinions given I have received so much conflicting advice from MDs. It’s astounding and I’m sure I am not the only person who is confused and wary about any decision I make.

I am 68 years old and have significant OP – my T score is a -3.5. I was diagnosed in October. I knew I was genetically predisposed so have regularly exercised since my 20s and have maintained a healthy diet. Since the diagnosis, I have upped the frequency of weight lifting and the use of resistance bands and I am doing what has been advised in terms of diet and supplements.

My Plan D insurance will only cover Prolia and Forteo. I have decided against Prolia and am reluctant to start Forteo. Backing up a little, I enjoy adventurous vacations such bicycle trips and strenuous, long hikes. In September, for example, I hiked a portion of the Camino de Santiago. While training, I slipped and fell three times on big rocks and didn’t break anything. Last year, I took a bicycle trip in Europe. I tried out an electric bike which got away from me and I took a hard fall – it hurt, but no fractures. I know that my bone density is low as reflected by my low T score, but I also believe the quality of my bones is good, and the DEXA score is only part of the equation. One of my doctors said, “Oh, you did your own DEXA test.”

Like everyone, I want to avoid a fracture more than anything so I am willing to consider Forteo, but here is my concern: Is there a chance I might hurt the integrity of my bones by going on it? Might I inadvertently worsen my own situation by taking medication just to improve my DEXA score?

I also want a life plan that needs to last maybe 30 more years. We take a medication for a year or two, then switch to another medication for a year or two. Then what?? None of the MDs I have talked to have had a satisfactory answer. Maybe they are waiting for new drugs to hit the market.

I’m really struggling with the decision. I know I am the only person who can make it, and I will have to be responsible for the outcome, but I would really like to hear what thoughts others have. Thanks so much - any input is welcome.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@babs10

Based on your most unfortunate experience, if you had it to do over, how much weight would you lift? I'm afraid to start beyond light hand weights for this very reason.

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Since my diagnosis, I don't even pick up watermelons from those big boxes at grocery stores.

To protect my spine, I practice hip hinges with a straight rod at my back to get used the habit of holding a straight back. Doing squats often (make sure you do it the right way) to strengthen major legs muscles also goes a long way for lower body strength, as well as for many daily tasks that involve at lower/floor level.

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@mayblin

Since my diagnosis, I don't even pick up watermelons from those big boxes at grocery stores.

To protect my spine, I practice hip hinges with a straight rod at my back to get used the habit of holding a straight back. Doing squats often (make sure you do it the right way) to strengthen major legs muscles also goes a long way for lower body strength, as well as for many daily tasks that involve at lower/floor level.

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I have that very same straight rod - a tip from Sherri Betz. I wish I had a mirror with me at all times to be extra sure. My nephew is a fitness instructor (not a PT) and he is also going to give me some tips.

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@babs10

Hi Windy, I tried that, but all that came up was a message someone sent to me. I didn't (and don't) see a way to generate a new message.

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@babs10 you click the envelope and then "compose" is on top right in the black oval space with the image of a pencil.

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@windyshores

@babs10 you click the envelope and then "compose" is on top right in the black oval space with the image of a pencil.

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I'd love that but when I click the envelope, I don't get a "compose" option nor a black oval space with the image of a pencil. LOL. I've asked for help from the moderator so we'll see!
Thanks for trying though - I do appreciate it! I'd send a screen shot, but can't do that or post any links yet b/c I'm too new.

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@glojo

I have not had an unfortunate experience…YET, thank goodness, but I work with a very experienced and cautious personal trainer. With. -3.2 lumbar and -1.9 femur, I started about 18 months ago with mostly 5 and 8 pound dumbbells and am presently using mostly 12, 15 and 20 pounders. I use these with squats, overhead presses, curls, deadlifts, rows, lunges, etc. I workout once a week with the trainer and duplicate the exercises at home. Since I do not have a barbell set, I’m not using that yet, but I have used a couple of machines at his gym….inclined leg press up to my own weight, and a few cable exercises with anything from 30-60 pounds. So nothing too ridiculously heavy, a very small start and very gradual increase, and adapting when needed for weak wrists and an occasional cranky knee. The MOST important thing is FORM and learning to properly use your core, which requires someone with experience to spot you and give feedback with consistent prompting. I would never attempt anything like this without professional guidance. It’s the best money I have ever spent!

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You have made great progress!

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@babs10

I have watched her and agree with you. I also signed up for the Onero online classes. I'm not sure how long I'll stick with it. All of this gets so expensive and if I end up taking Forteo, I'll really be in dire financial dire straits.

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I’m avoiding meds at the moment. But I’ll probably need to suck it up at some point. Trying to exercise as best I can and keep my spine from fracture at the same time. I hope things turn around for you with your program of exercise and use of meds. Keep us posted.

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@matilda1993

I’m avoiding meds at the moment. But I’ll probably need to suck it up at some point. Trying to exercise as best I can and keep my spine from fracture at the same time. I hope things turn around for you with your program of exercise and use of meds. Keep us posted.

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I think it's all going to boil down to my FRAX score and risk for fracture. Mine is "high risk." That's the last thing I want so I suspect I'll make the decision to go on meds sooner than later. I want to talk to my primary care physician who is out due to a bike accident. I'm sad for her and the timing couldn't be worse for me. I have an appt with her in mid March but I trust her and want her opinion before I begin so am hoping I won't fracture before then.

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Now I am really ticked off.

My Frax Scores:
From DEXA report 33.9 (Major), 16.4 (hip)
From 2 on-line calculators 21 (major), 9.5 (hip)

That difference is astounding. Let's just say that I am considerably relieved.

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@normahorn

Now I am really ticked off.

My Frax Scores:
From DEXA report 33.9 (Major), 16.4 (hip)
From 2 on-line calculators 21 (major), 9.5 (hip)

That difference is astounding. Let's just say that I am considerably relieved.

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That's intersting.

Check what frax method your dexa report states. I used a different system, university of sheffield frax assessment calculator, results are similar to what was on my dexa report, which used WHO fracture risk assessment tool.

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@mayblin

That's intersting.

Check what frax method your dexa report states. I used a different system, university of sheffield frax assessment calculator, results are similar to what was on my dexa report, which used WHO fracture risk assessment tool.

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Do you know what the difference is between the scoring systems?

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