Replies to Ray, the fact that your brother had terrible neuropathy would have to be a smoking gun….

← Return to PN: From Anger to Acceptance

Discussion

Neuropathy | Last Active: Aug 3 9:51pm | Replies (83)

Comment receiving replies

@njed

Ray, the fact that your brother had terrible neuropathy would have to be a smoking gun. I have no known family members with PN. That is interesting, and I'd ask if there are any other genetic testing that might be considered. I had CMT testing in 2018 and it came back with no markers. Ed

Jump to this post

Replies to "Ray, the fact that your brother had terrible neuropathy would have to be a smoking gun...."

Ray Kemble | @ray666 | Feb 19 4:39pm

Good suggestion, Ed. I'll admit I know nothing about genetic testing. Just now, I was listening to a Foundation webinar on genetic testing and hereditary PN. Interesting stuff. And it has me wondering what sort of test was it that I was asked to take and what, if any, I might expect the results to be. Oddly enough, asking to take the test as I was getting ready to go seemed almost an offhand remark on the part of the neurodoc: "Oh, say, Ray, would you mind … " etc. –Ray

VIEW AND REPLY