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Anyone else with Churg-Strauss or EPGA?

Autoimmune Diseases | Last Active: Nov 30 11:09am | Replies (44)
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@colleenyoung

Welcome @mth13. I moved your post about eosinophilic granulomatosis with polyangiitis (EGPA) or Churg-Strauss syndrome to this discussion that @roxy1954 started to connect people:
- Anyone else with Churg-Strauss or EPGA? https://connect.mayoclinic.org/discussion/churg-strauss-or-epga/

In addition to Roxy, you'll also be able to connect with @juanito @oldkarl @oakwoman and others.

@mth13, I'm encouraged to hear that you have found a rheumatologist who understands. What dose of prednisone are you currently on? What is the tapering schedule to begin?

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Replies to "Welcome @mth13. I moved your post about eosinophilic granulomatosis with polyangiitis (EGPA) or Churg-Strauss syndrome to..."
mth13 | @mth13 | Feb 20 11:03am

Currently on two days of 60 and today starting 40, after 37 days of 20 and an attempt to lower to 15 which brought on a rebound. Still in the discovery part of this treatment. I have a wonderful doctor who will lead me through this. After 12 years in the wilderness I am hoping to shed light on this disease with more doctors becoming aware of it.

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