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Does anyone suffer from Crohn's or colitis?
Autoimmune Diseases | Last Active: Nov 17 8:48am | Replies (111)Comment receiving replies
Do you have the HLA-B27 genetic marker? In addition to Crohn’s Disease(CD) it is also a marker for Ankylosing Spondylitis (AS) and for Uveitis. AS is another chronic condition. For me Uveitis has been one discrete event, but can repeat. You’ll want to learn about all three conditions and watch out for them.
I have AS (47 years) and CD (9 years). My one Uveitis flare was just before my CD diagnosis. I probably had CD much longer - maybe as long as AS - but mistook cramps as pain from AS. Unfortunately, no one ever warned me to watch for CD.
You’ll find you need to be proactive and learn about these conditions on your own. There was no internet when I was diagnosed with AS. Fortunately there is now, but now the problem is filtering out all BS.
I have been on Humira for about 6 years. Has been like a miracle. Except for the fused vertebrae has “cured” my AS. (I’m stuck with that.) And my last colonoscopy showed no signs of CD. But I was warned that each of the biologics tend to stop working after awhile and I’ll need to try another.
Other than Humira I just try to eat healthy - no alcohol and avoid additives.
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Very interesting information I didn’t know anything about the HLA-B27 testing? That makes sense though! I have back issues & arthritis in my hips due to a fracture in lower L3 & L4 area.. my brother in law in my chiropractor. He says I have
spondylolisthesis. I do believe that’s the name wondering if there is any relation to it??
Good to hear about your CD.. but I hope everything else gets better it sucks we have to suffer with something geez life is hard enough!
Just wanted to tell you I got food poisoning back in November and I just never got feeling better for weeks and then mid December I was as super sick couldn’t stop going to the bathroom then it got to throwing up and I couldn’t take it anymore so I went to the ER got admitted for 4 days.. I was so sick with colitis and lost 27 pounds in less then a month. Had endoscopy & colonoscopy done he said I have severe crohns!?!? I just don’t understand how? Why? It has turned my world upside down but I’m on the mend today gaining strength & weight back . But there are days my stomach hurts even when I touch it? Strange and some days I feel completely fine.. so I’m just dealing with it. Sorry for long post I just want to know more about why I feel the way I feel & will I ever be able to go off these medications it sucks!