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MAC & Bronchiectasis | Last Active: Mar 8 1:16pm | Replies (55)
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@dulwich

Also a genetic workup for CF and primary ciliary dyskinesia. And any other risk factors as you are young to have this
I had three years of antibiotics including Arikayce and last positive culture was 21/2 years ago. Now just airway clearance and lots of exercise.
Good luck- treatment works for many and you might tolerate it more easily than those of us 60 plus!

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Replies to "Also a genetic workup for CF and primary ciliary dyskinesia. And any other risk factors as..."
vmorton | @vmorton | Feb 19 12:05pm

I am 74 years old and was diagnosed with BE when I was 16. I was a classroom teacher for over 20 years and though exposed daily to kid's colds and sniffles, I managed to do just fine. The few minutes you spend doing daily airway clearance will ensure that you will be able to care for 2 children, as I did, and live a full life.

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mary80 | @mary80 | Feb 19 2:49pm

Thank you @dulwich
Can I ask you how old were you when you started therapy?

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