Markymarkfl
Thank you for sharing such helpful insight and guidance!
As an update, I did go get the baseline CA19-9 testing done and it was negligible. Then had my EUS done but no FNA was done as the doctor felt not worth the risk at this time. My symptoms somewhat have resolved (possibly from antibiotic rounds while sick) except my enzymes when tested by a fecal test were of mid range.
I was able to meet on an initial zoom call with a local pancreatic oncologist through UCSF. I was told best to monitor, put on surveillance and retest with MRI in six months (Jul 3).
I am scheduled at Mayo Rochester early April to meet with GI Pancreatic specialist with another CA19-9 test order while there. I already sent my tests over to them and they have been reviewed by Mayo radiologists as second opinions and documented for my visit. I’m concerned about the low pancreas enzymes and wondering why or how long this has been going on and where it might fit in with my IPMN cysts. The EUS stated I have more than one which I believe is common.

I thank you so much for all your detail and care here for us all as we try to best navigate through this surveillance process. Hopefully my next blood test and MRI scan shows things are stable. I’m thinking this doctor at Mayo may order the genetic testing as the oncologist here did not feel necessary. (?). I am trying to be super pro-active as my father had pancreatitis multiple times and his sister, my aunt, died from PC.

Thank you again for being there Markymarkfl. So much appreciate you!