← Return to Autonomic Dysfunction + POTS + LUPUS + Tachycardia = Rejection Letter

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@butterfly9

Google Normalyte. I have pots Sjogrens lupus fibro etc. I was carrying Gatorade around religiously. This has less sugar I believe and no dyes .. no preservatives. I had to find on my own to stay upright and functioning. How most of us are left to live to me is unsafe and sometimes unethical. Lack of coordination and communication when u have multiple issues isn’t ok. No one looks at the person as a whole. Been at this for nineteen years and fighting. A trip to Johns Hopkins. Things need to change for some of us patients who are really struggling to live a quality life.

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Replies to "Google Normalyte. I have pots Sjogrens lupus fibro etc. I was carrying Gatorade around religiously. This..."

I don’t know of anyone else has issues with their sodium. / water balance. ??? I hope one day for my daughter’s sake. They figure me out better 🙏🏻