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@margaret10

Do you have neuropathy in addition to neuroendocrine tumors? Did you have the neuropathy before starting Lanreotide? If so, there could be a genetic connection, specifically a mutated SDHB gene. I have mutant SDHB, neuropathy and had a neuroendocrine tumor as a child.

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Replies to "Do you have neuropathy in addition to neuroendocrine tumors? Did you have the neuropathy before starting..."

@margaret10: I have been treating Diabetes Type 2 for 30 yrs. Neuropathy symptoms in toes/feet/lower calf’s slowly increasing; fingers and hands are now tingly at times. This is a progressive disease and we fight every day to keep glucose numbers within range while still enjoying bites of our favorite foods. We do the same with diabetes medications - I am now insulin dependent, but you just do what you have to do. It is a balance… like juggling!
Use creams, patches, hot/cold, exercise, whenever and whatever relieves the discomforts that arise from Diabetic Neuropathy.
The best thing has been getting a “continuous glucose monitor” approved through Medicare/UHC! This little miracle gives you critical info about your glucose numbers and allows you to react immediately to rectify the hi or low! There are many brands- I use the Dexcom G7. Hound your doc to find a way to order this for your BEST health. I hope this helps you.
P.S. Yes, Lanreotide 120mg 28 day injections do effect my glucose readings/diet choices/exercise level. I have heard that the Chemo drugs also have their glucose changes.
We have to question every drug for changes in our diabetic regimen and make individual adjustments. Stay positive… life is good!