Update on my EMPD journey.
Diagnosed with EMPD on Dec. 13, 2023
Sent to an assigned oncologist gynecologist Dec.20, 2023
Planned partial vulvectomy Jan. 12. 2024.
Did my research! Found myempd.com
Decided to get a 2nd opinion, and saw a dermatologist with experience in EMPD Jan. 8, 2024. Cancelled vulvectomy surgery.
5 scouting biopsies to determine EMPD spread and whether or not invasive Jan.9, 2014. (All were negative for EMPD except the original.)
Had Moh’s surgery Jan. 18, 2024 (4 stages but all margins clear)
Had CT with contrast dye on chest, abdomen, & pelvis to make sure this was primary (already had other things done colonoscopy, etc) Feb. 1, 2024
Post op Feb. 13, 2024. Declared cancer free!
Be your own advocat!