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Myelomalacia: Let's connect

Spine Health | Last Active: Jun 4 7:32pm | Replies (52)

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@trisha1114

Yes! I had c 4-7 fused in 2016 or 17, myelomacia with a spontaneous spinal cord bleed , the repair was anterior. Last April my c 2-5 went and was fused dorsally . I have much permanent damage, numbness and sensation problems, gait issues and severe pain, random spasms in my left hand and arm and thighs and lower legs.. but my whole back is a mess of spasms, tight muscles , pain.
I see a pain management doctor now , actually I only started seeing the doctor after I proved the myelomalacia and had the second fusion( I bought a house after my scare of death 1500 miles away from my home state , where the cold isn't part of what is causing me extra pain)
For a yr that I was deteriorating before the second fusion, I begged for them to help me control the pain. The np I was seeing didn't know what it was and told me that myelomalacia wasn't pertinent to my pain management. It was horrific and now it's just terrible. I don't know what to do but my life is no kind of life .

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Replies to "Yes! I had c 4-7 fused in 2016 or 17, myelomacia with a spontaneous spinal cord..."

@trisha1114 I just wanted to say welcome to Connect.
Jennifer