← Return to Merkel Cell Carcinoma: I'd like to hear from others

Discussion

Merkel Cell Carcinoma: I'd like to hear from others

Neuroendocrine Tumors (NETs) | Last Active: Oct 20 7:30pm | Replies (133)
Comment receiving replies
@penlandtr1

Hi.
Wish I had a better idea about food. The only thing that doesn't make me sick are icecream sandwiches 😤. I finished my 20th radiation treatment last Friday. Only 10 more to go. I got a referral to Fred Hutchinson cancer center in Seattle. Hope they have some better ideas, as I was told last week that the MMCC has spread to my ribs. Stage III. I try to stay positive with all of this. Good days and bad.

Jump to this post

Replies to "Hi. Wish I had a better idea about food. The only thing that doesn't make me..."
rogermcintire | @rogermcintire | Feb 18 2:36pm

Hello Penlandtr, Glad to hear you are on the downhill side of your radiation treatments but sorry about the news of the spread to your ribs. Keep on with the positive attitude as much as possible and know thoughts and sincere prayers are headed your way. I too am in Stage Three since the MMCC had progressed to a lymph node at the time of the surgery to the side of my face.
I told Lynn99 that my go-to food when the side effects of radiation were at their worse was oatmeal (1/2 cup with cup of water), teaspoon of honey, raisins and Cinnamon with milk added to improve consistency.
We who are dealing with MMCC and its uncertainty deal with the ups and downs and pray the ups keep the upper hand! Keep in touch.

VIEW AND REPLY
lynn99 | @lynn99 | Feb 21 8:57am

Thanks for your reply. Sorry to hear it has spread to your ribs. The cancer center in Seattle may have more ideas of treatment etc. In Wi there was only 3 doctors who were recommended for MCC. And only 2 at the Mayo Clinic.
I got a new blender and I’m puring soup and fruit with protein powder and greens. . They are easier on my throat and mouth.
Mine was Stage III right from the start and it was like 24 days from discovering it until the biopsy. And another 20 days until surg. Unfortunately it’s fast. Praying for more good days for you. Hang in there.

VIEW AND REPLY