I had chronic pain for about 6 weeks before I got a cancellation with the
Most amazing neurologist .. I was due to have a back operation in 2 days time… my neurologist said cancel the op now it will not fix your problem. He had seen my problem before and treated it successfully. I was hysterical with the pain and he quietly said to me I will fix it. I promise. Put me into hospital the next day for steroid drip and immune suppressant drug. I was allergic to immune suppressant but found one USA one ? I’ll let you know the name .. that I was fine with. But still had chronic pain. Impossible to live with. So went back into hospital and had ketamine drip. It took 3 hrs for the this to work. So wonderful.. no more chronic pain. I had ketamine again for my burning feet which never stopped but unfortunately the pain specialist raised my drip level and I went into a k hole. I’ve got over that. My specialist was furious that this had happened as he hadn’t been consulted. I have a low drug tolerance it seems. At home I took Steroids, imiran which is an immune suppressant gabapentin at night. I now just take steroids but lowering the dose every few weeks and a very low dose of imiran which I will take for the rest of the year. I have a steroid drip and immune Drug of some kind ?every month in hospital. No burning feet my feet nerves are almost recovered but I now have what is the last symptom .. sandpaper feet which the doctor says will be gone in the next month. I get tingling in the feet and lowers legs which is the nerves recovering. Legs are weak even though I was a very fit person before. So that’s the story.journey to hell and back. I hope it helps someone who may have had a similar reaction to a trauma like me. My doctor says the pain will
Never return now the nerves are almost healed. I fear this but he says it will never. happen. He did say that I should never have a back or foot operation. Others are fine. A very rare condition so doctors don’t know what to do. I was so blessed to have such a beautiful kind clever man.