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Feeding tube patients: What's your experience?
Esophageal Cancer | Last Active: 7 hours ago | Replies (37)Comment receiving replies
What are people's experiences with nutrition for feeding tubes? How long does it take to adjust? When gastroesophageal cancer made it very difficult for my husband to swallow, he received a G tube. We've been using Kate Farms. One carton at a time through a gravity bag is OK, but he needs to have 5 a day to begin regaining weight, and when we up it to four cartons a day - divided into three feedings of 1 1/3 cartons each -- he begins to have diarrhea. Are there other formulas that are better tolerated? thank you so much. He's getting thinner and thinner.
Replies to "What are people's experiences with nutrition for feeding tubes? How long does it take to adjust?..."
This helped me tremendously but kind of expensive
Salmon, Oats & Squash - Pureed Food Meal for Feeding Tubes, 9.4 oz Pouch (Pack of 12 Pouches)
Visit the REAL FOOD BLENDS Store (Amazon)
@dcramer, I hope you saw the helpful posts from several members. How is your husband doing? How are YOU doing?
My Husband is on osmolite 1.5 and does 6 a day by 12 hour continous feed at 120 ml per hour, then does chicken broth by mouth to keep his sodium up. He was doing 8 boxes of Osmolite a day. He was 175lbs when Diagnosed with stage 4 esophageal cancer 1/31/24 and is now up to 188lbs as of last week. Still having issues with low iron. He has iron infusions, Immunotherapy, and Chemo every other week, but his iron is still extremely low. Had to have 5 bags of blood transfused to get his hemoglobin up from 7.1 to 9.0
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dcramer
I remember those days on feeding tube. I had esophageal cancer tumor and was on feeding tube for several months when I could not swallow food. We used 6 ISOSOURCE cartons a day to get nutrition. I was tired a lot and did have some diarrhea but not too bad. The really good news is the turmor was gone after 28 days of chemo and radiation. And now the feeding tube is gone but I still have port.
Don