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Small fiber neuropathy?

Neuropathy | Last Active: 12 hours ago | Replies (125)

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@retired123

I have been told by several doctors that SFN is life altering but not life threatening and have read pretty much the same. May I ask where you got your information? Thanks.

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Replies to "I have been told by several doctors that SFN is life altering but not life threatening..."

The electrophsiologist and a research neurologist that I went to Boston to see. Once it’s in your heart it makes life difficult. They try to control. It with meds. They don’t tell you how bad it can get until it happens. That’s what frustrating. They told me that I would die in my sleep. It is called CAN (cardiac autonomic neuropathy). I am an RN and everyone says it can’t kill you but I never thought about the heart and what happens when the nerves start screwing up. So I started reading the medical journal of cardiology because my first reaction is I told the doctor he was lying. He knew that I had been through RN school so he gave me a bunch of articles to read. I decided instead to look it up and do it for continuing education credits. Was not happy. Then I had to go back and apologize after the biopsies for SFN came back positive. That’s how it progressed.