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Small fiber neuropathy?

Neuropathy | Last Active: 12 hours ago | Replies (125)

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@nemo1

Thank you Art. When it affects the heart and blood pressure, do the two happen simultaneously? Or can you have low 50;s. To 60’shr (from high heart rate 90’s for a year and then have the blood pressure go to 107/75 where it is usually higher. Not saying there is a link but I don’t understand why there is a change. When do you tell the neurologist about a strange heart rate? I am on blood pressure meds, same ones for long time. Don’t want to overthink it but don’t want to ignore what might be important signs. Thank you.

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Replies to "Thank you Art. When it affects the heart and blood pressure, do the two happen simultaneously?..."

I hard arrhythmias first.. Scared me. I have a son with congenital heart disease that almost died from tachycardia. My heart started jumping in my sleep. It would stop and when it started back up it would jump and wake me up. I was afraid to go back to sleep. I had a one month holter monitor test showed the bradycardia and tachycardia. I was sent to a electrophysiologist that diagnosed with cardiac autonomic neuropathy. Being a RN I told him he was lying. I went to the neurologist and had the biopsies. Within the
last six months my BP has been high. 159/99. The arrhythmias have started back up so the cardiologist and electrophysiologist decided to do another one month holter monitor on me. We will see what happens from here. The BP medication made me nauseous and throwing up so we stopped it.

Before it went high it was always low.

My BP was originally 120/65 or sometimes 125/60.Then starting thin November overnight jumped 159/99. Why itt happened that fast I don’t know. I guess from 2021 to now it gave my body a chance to adjust to the arrhythmias and boom new problem. They could tell on my echocardiogram in November that my arrhythmias had gotten worse because now my left ventricle in getting enlarged. I have had pericardial effusion since 2004. That did not bother me. We believe I truly got the neuropathy when I got bacterial spinal meningitis. I was in the hospital two weeks first week unconscious, then they sent me home with a PICC (a IV placed permanently in your upper arm it’s a surgery) line for three months and then oral antibiotics for another three months.