well i did the first chemo on Wed...not bad at all , nothing like i expected...LOT of pain in the port area but that is really calming down now...
however no real issues other than pain til yesterday...i've started having pain in my quads, IT bands, and hips...in addition to normal places...nausea is AWFUL today, taking compazine and zofran and on day 3 of the steroid.. i had a seizure about 6 am but i DO have a seizure disorder (99% are while i'm sleeping, the other rare ones are usually if i've missed multiple doses of meds or extremely exhausted) and pain can trigger them more often than not, so i figured all the new pains is what brought that on...i've slept most of the morning so i am feeling some better...they tried me on tramadol, which doesn't work well unless i take naproxen with it, and 5mg oxycodone...which again isn't strong enough to last 4 hours...both seem to last about 3 hours so i've been alternating them...they tried to give me percocet but i can't take anything with tylenol in it...so i guess Mon i'll be asking for something else...
do you all know anything stronger that doesn't have tylenol that is often prescribed? i don't think they've ever had to deal with a tylenol allergy because its kinda rare...and it makes me horribly sick, nauseous fatigued, etc and i sure don't need that on top of the chemo...