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← Return to Mayo Clinic in Jacksonville for Prostate cancer treatment
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Mayo Clinic in Jacksonville for Prostate cancer treatment
Prostate Cancer | Last Active: Mar 6 12:15pm | Replies (14)Comment receiving replies
Hello Colleen!
To answer your last question first, I am overwhelmed to be honest. Scared and unsure at this point. There is so much information and finding the right place to go for treatment, as well as what treatment to choose, is daunting, to say the least. My husband has a PIRADS 4, clinically significant Gleason 7 (as per his current Doctor) and his PSA is 7.7 (latest one was 6.4). He has had a CT scan, Bone Scan, PSMA Pet scan and an MRI. There is no known spreading outside of the prostate that can be seen, although his Dr told him it is possible he could have microscopic cancer cells in the lymph nodes that are undetectable. Treatment suggestion right now is 5 1/2 weeks of radiation to pelvic lymph’s then 5 day SBRT treatment to the prostate, and 6 to 12 months of hormone therapy (pill form). Sorry, I am not very good at all the technical jargon. He was seen by a urologist here in Oregon, who did the biopsy and diagnosed him originally, then sent him for the CT and Bone scan (we tried to ask for a PSMA and an MRI from this doctor but he didn’t feel they were necessary). We were told either surgery or radiation were the two options so we first researched radiation because my husband is not to keen on the surgery idea. We went to see a radiologist oncologist here in Oregon and we were not impressed. We sought a second opinion from my sister in law’s radiologist oncologist in California and we really like him. He scheduled the PSMA Pet Scan and MRI. He is the one who is recommending the treatment I stated above. My husband still is interested in the MAYO clinic however, which is why I inquired.
Replies to "Hello Colleen! To answer your last question first, I am overwhelmed to be honest. Scared and..."
You did a great job explaing everything. I'm just like you; a wife that is extremely concerned about our husband's prostate treatment. My husband Jim, will begin treatment at Mayo in Az. He is going to have a surgery on 2-29-24 to put in Boragel instead of the Spaceor gel that we thought he was going to have. He has no metastasic but the cancer is outside the prostate in the muscle. Has anyone had the Boragel and what was your experiences. I also was wondering if there would be blood in the urine after the marker and Boragel surgery? So, the weather in AZ is quite lovely the next few months. I definately recommending to Phoenix for Proton Beam therapy. If you are retired, use this lovely environment as a second honeymoon with therapy. I'm also recommending the Decipher test which Jim will have on 3-7-24. It helps determine the risk of cancer through the DNA somehow. If someone would like to explain this better, please do.
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@thermurfs
I do not see you have the Decipher test. It is a gentic test done on the biopsies already taken and will give a more precise determination of his risk level.
I am unfamiliar with the providers other than Mayo and UFPTI. But my suggestions is to go to Mayo Clinic at the easiest location for you and get second opinion. I would asked about radiation outside of prostrate if nothing showing it is. Also the Decipher test will show a better idea on treatments needed.
I see suggestion from provider was hormone treatments. Again I think a Decipher test would help determine the need for this. I was an intermediate risk and hormone was being recmmended then got Decipher test and came back low risk and then change to my treatment from hormone to no hormones and just radiation treatments.