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I have 3 nueroendocrine tumors in my left lung

Neuroendocrine Tumors (NETs) | Last Active: Feb 20 8:52am | Replies (5)
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@dbamos1945

I have Neuroendocrine tumors (small intestine metastases to liver). My treatment for the last year is a shot of 120mg Lanreotide every 28 days in my Oncoligists office. Few side effects resulting in stable tumor growth. I am open to help answer your concerns.

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Replies to "I have Neuroendocrine tumors (small intestine metastases to liver). My treatment for the last year is..."
margaret10 | @margaret10 | Feb 18 11:36pm

Do you have neuropathy in addition to neuroendocrine tumors? Did you have the neuropathy before starting Lanreotide? If so, there could be a genetic connection, specifically a mutated SDHB gene. I have mutant SDHB, neuropathy and had a neuroendocrine tumor as a child.

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