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SFN-affects the organ’s gastroparesis of the stomach, loss of bladder control,, heart either beats too fast or too slow and the doctors have problems controlling blood pressure. One problem for females you no longer feel the female sex organs. Then it affects the pancreas and thyroid. Once it’s in the heart the electrophsiologist gives you approximately seven years left to live. The treatment is IVIG therapy takes at least six months to a year to notice the difference. Once you go on IVIG therapy you remain on it for life. You go off it will progress really fast. It starts working immediately but most people get frustrated because they can’t tell the difference. I am trying to fight to get on it. I have the heart problems, stomach and bladder. Plus chocking problems and it affects the lungs.
I now make myself go to the bathroom every hour.. After having accidents in public it was embarrassing. I activate the timer on my cellphone to remind myself when running around.
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I have been told by several doctors that SFN is life altering but not life threatening and have read pretty much the same. May I ask where you got your information? Thanks.
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Thank you Art. When it affects the heart and blood pressure, do the two happen simultaneously? Or can you have low 50;s. To 60’shr (from high heart rate 90’s for a year and then have the blood pressure go to 107/75 where it is usually higher. Not saying there is a link but I don’t understand why there is a change. When do you tell the neurologist about a strange heart rate? I am on blood pressure meds, same ones for long time. Don’t want to overthink it but don’t want to ignore what might be important signs. Thank you.