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How did you cope with the side effects tapering off prednisone?

Polymyalgia Rheumatica (PMR) | Last Active: Feb 19 1:42pm | Replies (179)
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@jam70

What is discontinuation syndrome? Prednisone withdrawal?
When I tapered to 7.5mg in October from 10mg in September I had diarrhea for10-12 days. December 5 mg and January 4mg no problem minimal pain and stiffness but February 3 mg and again diarrhea after 5 days for 10 days. Rheumatologist says not related to decreasing or prednisone. Anyone else have this problem with decreasing/tapering? Thanks

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Replies to "What is discontinuation syndrome? Prednisone withdrawal? When I tapered to 7.5mg in October from 10mg in..."
cgm | @cgm | Feb 18 10:24am

Hello! I am attaching a Mayo Clinic post on discontinuing prednisone too quickly 👍

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Prednisone withdrawal- Why taper down slowly? - Mayo Clinic (Prednisone-withdrawal-Why-taper-down-slowly-Mayo-Clinic.pdf)

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art43 | @art43 | Feb 18 1:22pm

Diarrhea is a known symptom of adrenal insufficiency. Hopefully your doc is aware of your symptoms.

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vanns | @vanns | Feb 19 9:16am

I have had diarrhea since I was diagnosed with PMR and started Prednisone. I blamed the medication. Both my rheumatologist back in October and and my primary physician in December said Prednisone did not cause diarrhea. My doctor sent me to a GI doctor last month and I had a colonoscopy. Turns out that I have Lymphocytic colitis, another autoimmune disorder that must have occurred with the onset of the PMR. Not quite sure why my Rheumatologist wouldn’t have thought of that but grateful now I have an answer. I meet with the GI doctor soon to receive treatment for it. It has gotten a bit better on its own, too, but some of that is probably because I limit fiber.

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