Churg-Strauss or EPGA
After 14 years struggling with symptoms, and many prednisone tapers, I finally found a rhumatologist who researched and properly diagnosed this. My understanding is that only 1 or 2 people per million get this per year, so not well recognized by most doctors. I will be on a long slow taper and hope to go in remission. If it recurs, more of the same and possibly a biologic to spare the prednisone.
Feeling grateful for many things, nd this doctor especially.